Wait, how do you spell that?: A rare disease podcast
by Patient Worthy
October 27, 2023 4:28 am
Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
Recent Episodes
Building Equity in the Breast Cancer Community, feat. Jasmine Souers of the Missing Pink Breast Cancer Alliance
2 weeks agoVon Hippel-Lindau Disease: Meet Patient Advocate Justin Corbin
3 weeks agoHow to Support the Supporters, feat. The Courageous Parents Network
11 months agoWorking Toward the Future, Feat. GACI Global and Inozyme Pharma
1 year agoThe IRSF: 40 Years of Making Connections
1 year agoThe 2022 Living Rare, Living Stronger Patient and Family Forum
1 year agoGetting the Support You Need, feat. Cancer Commons
1 year agoThe Importance of Persistence, feat. Patient Advocate Nathan Ehrlich
2 years agoForging a Path in Rare Disease Research, Feat. the Myrovlytis Trust
2 years agoExciting Rare Disease Developments in the EU, feat. HAE Junior
2 years ago