Wait, how do you spell that?: A rare disease podcast

Wait, how do you spell that?: A rare disease podcast

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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.

Recent Episodes

  • Building Equity in the Breast Cancer Community, feat. Jasmine Souers of the Missing Pink Breast Cancer Alliance

    2 weeks ago
  • Von Hippel-Lindau Disease: Meet Patient Advocate Justin Corbin

    3 weeks ago
  • How to Support the Supporters, feat. The Courageous Parents Network

    11 months ago
  • Working Toward the Future, Feat. GACI Global and Inozyme Pharma

    1 year ago
  • The IRSF: 40 Years of Making Connections

    1 year ago
  • The 2022 Living Rare, Living Stronger Patient and Family Forum

    1 year ago
  • Getting the Support You Need, feat. Cancer Commons

    1 year ago
  • The Importance of Persistence, feat. Patient Advocate Nathan Ehrlich

    2 years ago
  • Forging a Path in Rare Disease Research, Feat. the Myrovlytis Trust

    2 years ago
  • Exciting Rare Disease Developments in the EU, feat. HAE Junior

    2 years ago