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Wait, how do you spell that?: A rare disease podcast

Wait, how do you spell that?: A rare disease podcast

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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.

Recent Episodes

  • Navigating the Patient's Journey featuring Brenda Snow

    3 months ago

  • The Role of AI in Medicine feat. Joe Lennerz, BostonGene

    8 months ago

  • Spreading PAH Awareness featuring Steve Smith

    9 months ago

  • All About Koolen de-Vries Syndrome, feat. Patient Advocate Ashley Point

    10 months ago

  • PKD and the Gift of Life, feat. Patient Advocate Valen Keefer

    11 months ago

  • The Power of Resiliency, Feat. Multiple Myeloma Patient Advocate Keisha Hickson

    12 months ago

  • Epilepsy and Unmet Need, feat. The LGS Foundation and Ovid Therapeutics

    1 year ago

  • Ewing Sarcoma and the New Normal, feat. Patient Advocate Brandi Benson

    1 year ago

  • 50 Years of Supporting the TSC Community, feat. TSC Alliance President and CEO Kari Rosbeck

    1 year ago

  • Helping Rare Parents Help Themselves, feat. Ronda Thorington, LPC

    1 year ago