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Wait, how do you spell that?: A rare disease podcast

Wait, how do you spell that?: A rare disease podcast

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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.

Recent Episodes

  • Spreading PAH Awareness featuring Steve Smith

    2 weeks ago

  • All About Koolen de-Vries Syndrome, feat. Patient Advocate Ashley Point

    1 month ago

  • PKD and the Gift of Life, feat. Patient Advocate Valen Keefer

    3 months ago

  • The Power of Resiliency, Feat. Multiple Myeloma Patient Advocate Keisha Hickson

    4 months ago

  • Epilepsy and Unmet Need, feat. The LGS Foundation and Ovid Therapeutics

    4 months ago

  • Ewing Sarcoma and the New Normal, feat. Patient Advocate Brandi Benson

    5 months ago

  • 50 Years of Supporting the TSC Community, feat. TSC Alliance President and CEO Kari Rosbeck

    5 months ago

  • Helping Rare Parents Help Themselves, feat. Ronda Thorington, LPC

    6 months ago

  • IPF and the Importance of Clinical Trials, feat. Patient Advocate Murray Walz

    6 months ago

  • The MS Poltergeist, feat. Patient Advocate Jennifer Angus

    7 months ago