RARE-X
by RARE-X
April 4, 2024 8:35 am
We are a dedicated team of committed forward thinkers transforming rare disease in support of patients. PATIENTS’ DATA POWERING PROGRESS
Recent Episodes
Changing the Understanding of Rare Diseases with Data
1 year agoAn Open Science Data Challenge to Address Rare Neurodevelopment Diseases
3 years agoThe Power of Being Counted
3 years agoEnsuring Diversity, Equity, and Inclusion in the World of Rare Disease
3 years agoCreating a Faster Path to a Rare Disease Diagnosis
4 years agoReinventing the Consent Process to Make It Patient-Centric
4 years agoA Collaboration with a Shared Vision for Transforming the Rare Disease Landscape with Patient Data
4 years agoThe Challenges of Long-Term Follow-Up Studies for Cell and Gene Therapies
4 years ago