Not So Rare Podcast
by Taylor and Liz
August 16, 2023 2:00 am
It is estimated that over 300 million people are affected globally by rare diseases. Although each rare disease only affects a small group of individuals, we believe that by sharing our experiences living with a rare disease, we can help the broader rare disease community with their rare disease journeys. Join us, Taylor and Liz, as we further explore the impact of rare diseases on our lives. Together we are ‘Not so Rare!’ Looking for updates or a way to connect with Taylor and Liz? Look for us on Instagram by following @NotSoRarePodcast as well as on Facebook by searching for Not So Rare Podcast. Also, feel free to message us at notsorarepodcast@gmail.com. We love to hear from all of you!
Recent Episodes
Rare Disease and Family Planning - Part 4
2 years agoLife Update from Taylor & Liz
2 years agoAdvocacy
2 years agoTHE Not So Rare Mom
2 years agoChallenges of the Self-Diagnosed
2 years agoPost Appointment Anxiety
2 years agoFundraising
2 years agoMeet Lily - Advocating through Community
2 years agoExploring Dual Therapy Treatments
3 years agoRare Disease and Family Planning - Part 2 - Taylor
3 years ago