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MyFSHD

MyFSHD

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MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.

Recent Episodes

  • The three little (FSHD) piggies.

    3 months ago

  • CRISPR in the clinic

    4 months ago

  • Allow me to reintroduce Jaegerthekidd

    6 months ago

  • Assessing the case, so far, for apabetalone as a new drug candidate being investigated for FSHD.

    6 months ago

  • Catching up on clinical trials

    7 months ago

  • Live from Australia

    7 months ago

  • A gene therapy approval for Duchenne muscular dystrophy and understanding Therapeutic Misconception.

    9 months ago

  • More questions, more answers, and some explaining to do.

    10 months ago

  • Your questions, our answers.

    10 months ago

  • Live from the Biologic Scaffolds for Regenerative Medicine Symposium in Napa California

    11 months ago