Talk Shows > Lifestyle > Health & Fitness > Health Conditions

MyFSHD

MyFSHD

by

MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.

Recent Episodes

  • MyFSHD is worldwide on FSHD Day

    4 weeks ago

  • Our take on Avidity's FORTITUDE phase 1/2 trial data

    1 month ago

  • Options for nutrition, supplements, and exercise for FSHDers with Tamara Gottlieb (Part 2)

    3 months ago

  • Options for nutrition, supplements, and exercise for FSHDers with Tamara Gottlieb (Part 1)

    3 months ago

  • FaceToned® Exercises for the Face with Carme Farré

    3 months ago

  • Brad, our angry Dad with your questions (pt 2)

    4 months ago

  • Brad, our angry Dad is back with your questions (Pt 1)

    4 months ago

  • The science and the foundational funding leading to the current technologies in FSHD clinical trials.

    4 months ago

  • Friends and funding.

    5 months ago

  • For FSHD gene therapy you need to "Have-a-Little-Heart"

    9 months ago