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MyFSHD

MyFSHD

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MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.

Recent Episodes

  • For FSHD gene therapy you need to "Have-a-Little-Heart"

    1 month ago

  • Fulcrum follow-up with our Angry Dad

    2 months ago

  • Our take on the REACH losmapimod clinical trial results

    2 months ago

  • A FORTITIDE follow-up with our (not so) Angry Dad.

    5 months ago

  • A(+) is still for Avidity: give me the good stuff!

    5 months ago

  • Pigs and p38

    6 months ago

  • The three little (FSHD) piggies.

    10 months ago

  • CRISPR in the clinic

    11 months ago

  • Allow me to reintroduce Jaegerthekidd

    1 year ago

  • Assessing the case, so far, for apabetalone as a new drug candidate being investigated for FSHD.

    1 year ago