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Cystinosis Rare: A Journey Into the Unknown – Season 2

Cystinosis Rare: A Journey Into the Unknown – Season 2

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A podcast for the Cystinosis community and general public, sharing experiences and both educating and supporting the affects of this rare genetic disease. Credits: Steve Schleuder, Jana Healy, Sara Healy, Cheryl Simoens Hosts: Steve Schleuder, Jana Healy, Sara Healy WANT TO LISTEN TO SEASON 1! Check it out here: https://open.spotify.com/show/2mQfY55IraUvJppRazO8Tk?si=LNp83ZRgTUmd8BfuN8T0lg

Recent Episodes

  • Episode 13: Cystinosis - A Young Adult Perspective

    2 months ago

  • Episode 12: Work-Life Balance with a Chronic Illness

    7 months ago

  • Episode 11- Medical Trauma

    12 months ago

  • Episode 10: Mothers with Cystinosis

    2 years ago

  • Episode 9- Health Choices

    2 years ago

  • Beacon Interview

    2 years ago

  • Coping Mechanisms

    3 years ago

  • Episode 7: Dr. Emily Ricotta COVID-19 Vaccine questions

    3 years ago

  • Episode 6: Chronic Illness, Stress and Anxieties During the Pandemic

    3 years ago