Cystinosis Rare: A Journey Into the Unknown – Season 2
by CRN: Adult Leadership Advisory Board
September 28, 2024 2:55 pm
A podcast for the Cystinosis community and general public, sharing experiences and both educating and supporting the affects of this rare genetic disease. Credits: Steve Schleuder, Jana Healy, Sara Healy, Cheryl Simoens Hosts: Steve Schleuder, Jana Healy, Sara Healy WANT TO LISTEN TO SEASON 1! Check it out here: https://open.spotify.com/show/2mQfY55IraUvJppRazO8Tk?si=LNp83ZRgTUmd8BfuN8T0lg
Recent Episodes
Episode 13: Cystinosis - A Young Adult Perspective
10 months agoEpisode 12: Work-Life Balance with a Chronic Illness
1 year agoEpisode 11- Medical Trauma
2 years agoEpisode 10: Mothers with Cystinosis
3 years agoEpisode 9- Health Choices
3 years agoBeacon Interview
3 years agoCoping Mechanisms
3 years agoEpisode 7: Dr. Emily Ricotta COVID-19 Vaccine questions
4 years agoEpisode 6: Chronic Illness, Stress and Anxieties During the Pandemic
4 years ago