Being Rare
by Sarita Edwards
April 20, 2024 6:18 am
Hosted by Sarita Edwards, the Being Rare Podcast is an online community of rare disease conversations. We’ll have intimate and sometimes difficult conversations about issues in the rare disease space. Popular for our 1 minute episodes, Being Rare offers insight, perspective, and positive reinforcement. Being Rare is not just a podcast; it’s a talk radio style platform that aims to make the extraordinary world of rare diseases accessible, relatable, and impactful. Stay connected – email us podcast@theewefoundation.org. Follow us on social media @beingrarepodcast! Support this podcast: https://podcasters.spotify.com/pod/show/beingrare/support
Recent Episodes
Ep 100. Protecting Our Futures: Black Maternal Health and Child Abuse Neglect & Prevention
1 week agoEp 99. Funding Challenges for Small Nonprofits, Research, Scholarships, Inclusion, and More!
3 weeks agoEp 98. What Are You Telling Families Who Get A Trisomy 18 Diagnosis?
1 month agoEp 97. March is Trisomy Awareness Month & Women's History Month
2 months agoEp 96. How We Chose to Navigate the Holidays and the Final "Happy New Year" of 2024!
3 months agoEp 95. We Haven't Spoken Since Last Year, Happy New Year!
4 months agoEp 94. Navigating the Holidays with Rare Disease #podcast #holidays #raredisease #selfcare
5 months agoEp 93. Overwhelmed by Grief #podcast #grief #raredisease #trisomy18
6 months agoEp 92. Know Your Family History: A Conversation About Health Legacy #podcast #family #health #legacy
6 months agoEp 91. Let's talk about Newborn Screening in Alabama
7 months ago