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Being Rare

Being Rare

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Hosted by Sarita Edwards, the Being Rare Podcast is an online community of rare disease conversations. We’ll have intimate and sometimes difficult conversations about issues in the rare disease space. Popular for our 1 minute episodes, Being Rare offers insight, perspective, and positive reinforcement. Being Rare is not just a podcast; it’s a talk radio style platform that aims to make the extraordinary world of rare diseases accessible, relatable, and impactful. Stay connected – email us podcast@theewefoundation.org. Follow us on social media @beingrarepodcast! Support this podcast: https://podcasters.spotify.com/pod/show/beingrare/support

Recent Episodes

  • Ep 101. What's happening in May? Myositis Moonwalk, Mother's Day, Mental Health, One Minute Mondays

    7 months ago

  • Ep 100. Protecting Our Futures: Black Maternal Health and Child Abuse Neglect & Prevention

    7 months ago

  • Ep 99. Funding Challenges for Small Nonprofits, Research, Scholarships, Inclusion, and More!

    8 months ago

  • Ep 98. What Are You Telling Families Who Get A Trisomy 18 Diagnosis?

    8 months ago

  • Ep 97. March is Trisomy Awareness Month & Women's History Month

    9 months ago

  • Ep 96. How We Chose to Navigate the Holidays and the Final "Happy New Year" of 2024!

    10 months ago

  • Ep 95. We Haven't Spoken Since Last Year, Happy New Year!

    11 months ago

  • Ep 94. Navigating the Holidays with Rare Disease #podcast #holidays #raredisease #selfcare

    12 months ago

  • Ep 93. Overwhelmed by Grief #podcast #grief #raredisease #trisomy18

    1 year ago

  • Ep 92. Know Your Family History: A Conversation About Health Legacy #podcast #family #health #legacy

    1 year ago