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A Rare Reality

A Rare Reality

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We are living ‘A Rare Reality’ and we want to tell you all about it! Join Jordan’s Guardian Angels as we cover dozens of topics in the rare disease space and give you a closer look at our groundbreaking research into Jordan’s Syndrome that could one day change the world. We want to uplift, advocate, motivate and inform.

Recent Episodes

  • A Rare Reality, Season 4, Episode 1 – Everything You Needed to Know About the Family Conference (July 2024)

    3 months ago

  • A Rare Reality, Season 3, Episode 23 – We Are Thankful!

    5 months ago

  • A Rare Reality, Season 3, Episode 22 – Thankful Ambassadors

    5 months ago

  • A Rare Reality, Season 3, Episode 21 – JGA Update

    6 months ago

  • A Rare Reality, Season 3, Episode 20 – Helping to Navigate Life’s Journeys with Dr. Carla Friedli

    6 months ago

  • A Rare Reality, Season 3, Episode 19: Standard of Care Publication

    7 months ago

  • A Rare Reality, Season 3, Episode 18: Research Update with Dr. Wendy Chung

    7 months ago

  • A Rare Reality, Season 3, Episode 17 – Stories of Hope: Matt Schwartz

    8 months ago

  • A Rare Reality, Season 3, Episode 16: Stories of Hope

    8 months ago

  • A Rare Reality, Season 3, Episode 15: Simple Luxuries, Part Two

    9 months ago