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A Rare Reality

A Rare Reality

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We are living ‘A Rare Reality’ and we want to tell you all about it! Join Jordan’s Guardian Angels as we cover dozens of topics in the rare disease space and give you a closer look at our groundbreaking research into Jordan’s Syndrome that could one day change the world. We want to uplift, advocate, motivate and inform.

Recent Episodes

  • A Rare Reality, Season 4, Episode 1 – Everything You Needed to Know About the Family Conference (July 2024)

    1 year ago

  • A Rare Reality, Season 3, Episode 23 – We Are Thankful!

    2 years ago

  • A Rare Reality, Season 3, Episode 22 – Thankful Ambassadors

    2 years ago

  • A Rare Reality, Season 3, Episode 21 – JGA Update

    2 years ago

  • A Rare Reality, Season 3, Episode 20 – Helping to Navigate Life’s Journeys with Dr. Carla Friedli

    2 years ago

  • A Rare Reality, Season 3, Episode 19: Standard of Care Publication

    2 years ago

  • A Rare Reality, Season 3, Episode 18: Research Update with Dr. Wendy Chung

    2 years ago

  • A Rare Reality, Season 3, Episode 17 – Stories of Hope: Matt Schwartz

    2 years ago

  • A Rare Reality, Season 3, Episode 16: Stories of Hope

    2 years ago

  • A Rare Reality, Season 3, Episode 15: Simple Luxuries, Part Two

    2 years ago