Stronger Every Day podcast – Portland Roots Media
by Bo Bigelow
November 13, 2024 5:01 pm
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She’s different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autism
Recent Episodes
Breaking Through Isolation: Finding Connection as a Rare Disease Parent
3 days ago00:00/00:00Refuel to Be Stronger: Quick Self-Care Hacks for Busy Rare Disease Parents
1 week ago00:00/00:00Building Your Child's Dream Team: Navigating Therapies for Rare Diseases
2 weeks ago00:00/00:00Stronger Together: Aligning with Your Partner on the Rare Disease Journey
3 weeks ago00:00/00:00Tech Solutions for Easier Communication: Helping Your Neurodiverse Child Express and Self-Soothe
1 month ago00:00/00:00Traveling with Autism: 14 Essential Hacks for a Smoother Journey - Part 2 of 2
1 month ago00:00/00:00Traveling with Autism: 14 Essential Hacks for a Smoother Journey - Part 1 of 2
2 months ago00:00/00:00Unlocking Tess’s Potential: How a Simple Diet Change Transformed Her Health - Part 2 of 2
2 months ago00:00/00:00Unlocking Tess’s Potential: How a Simple Diet Change Transformed Her Health - Part 1 of 2
2 months ago00:00/00:00From Stares to Support: Navigating Public Reactions and Guiding Loved Ones in Caring for Your Child
2 months ago00:00/00:00